Well the East Midlands Sarcoma Support Group had there charity Curry night on Monday 17th May. After lots of preparation (and thankfully some help this year!), we managed to raise just over £2200 for The Sarcoma Trust. The event was attended by 76 people and the auction alone raised over £1400 - I feel so honored to be part of such a lovely bunch of people that attend the support meetings in Leicester. Importantly we do not feel alone in fighting this cancer "Sarcoma knows no boundaries", and although we are all unique in our diagnosis / sites of tumours etc we continue to support and raise awareness of Sarcoma. At present we have over 26 members of the group in Leicester / Nottingham and that does not include young people / or children that have Sarcoma's in the county. Young children and adults are often having to go through very major surgery / chemo to try and fight this (some with debilitating surgery); we do have one lady who attends the group who lost her son at the age of just 18yrs.
So yes we will continue to try and support the research / drugs trials into treatments for Sarcoma - as at the moment there is not specific chemo treatment with more than a 20 - 40% chance of working (and this is only on certain Sarcoma's - mine is not one of these).
I am still joint list mamager for the Sarcom UK email site, but am struggling with this at them moment. Supporting those that are also in a difficult place is difficult, and I too never know whether I am using /saying the right words. Also emotionally not sure if I am strong enough to carry on this work at the moment. But will take my time in making the deciosn as to whether to simply just carry on as a member - they have certainly offered me lots of friendly help / advice and support since 2006. Especially good advice given when having the thorocotomies - exercise to get those lungs working!!!
Going to be now, night , night and love to all. XXX
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