Well holidays are great for relaxing, laughing, drinking vino and eating Moules et frites (lovely and juicy in France!!!), But home coming and cancer do not mix. Feeling rather low after such a great family time and now facing my `cancer demons`again. So up to usual trick of not being able to or willing to go and have some ZZZzzzz (sleep), at night. I just want to keep awake and experience life!!!
Sleep is needed ....but I fight with it at the moment. Also after a week at home the wheezing and breathlessness has returned. This obviously makes me anxious; as breathing is essential to life!!! (well you still have to laugh - sorry for my strange humour).
Going down to the Brompton on the 17th August to see Dr Shan (lung specialist), hoping to do a bronchoscopy and look at taking away (part - not all) of the tumour that is obstructing the lower left bronchus. Nervous about the procedure, hoping it will help and that I will be out of hospital on the same day!
Slightly confused that Leicester have refused to do this procedure (at the moment), though in my mind I know that the Brompton / Marsden hospitals are specialists in the area of treating Sarcoma patients. As they have links with other world wide teams, as demostrated in the getting together of these professionals at the recent British Sarcoma Group Conference in London (Medical profesionals from USA, Milan, France, Germany etc), sharing there knowledge and expertise. So I can only presume that the Brompton have more experince (eg, treat more than 100 patients per year, compared to lower numbers in Leicester; also being a relativley new Multi diciplinary Team).
Anyway I was disapointed, but need to try the `best`treatment in order to try and manage this damn cancer. As I said to one friend - at least down at the Brompton/Marsden I can contribute to there findings / reseach on Sarcoma and beenifit patients that way.
So to end this blog - I have decided to go and see my mad (but not bad), friends in the North. Taking David with me so that he can experience the party life in Scarborough with Nicole. Catch up with Mandy, Annie and hopefully Ruth - catch, laugh and try to forget that we have know each other for "How many Year???".
Love and laughter
K XXX
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