Be careful with those old bones!!!

Well as I said I have been having pain in my upper arm and hip; finally had a bone scan last week and was called into an emergency appt this Tuesday.

After the pain increasing to a point where I am now on morphine and struggling to do tasks - they agreed also to X-ray both areas before my appt this week.
Then told me that I have a tumour in my left humerus bone (very invasive and not rushing to operate on due to my lug / bronchus mets), and mets in
a bone in pelvis area which explains the pelvic/hip pain. I will be having radiotherapy to both areas and they have fitted me with a cast/splint to my left
upper arm to offer support / prevent a possible fracture. I have been advised to wear it at night as well (not very sexy)- but am just getting use to the day time first and may need that extra support during radiotherapy. They are trying there best to allow me to still have movement to allow me to drive etc for as long as possible - yeh I like to have my wheels !!

After radiotherapy they may consider looking into surgery further - but I would not be eligible for a spinal anaesthetic as it would be too high a position in my back, and not sure if my lung function would allow for a general anaesthetic. Blood iron low so on iron tablets as well and rattling with all the medication.

I just feel as though it is all not real at the moment - why do I keep having unusual mets? in silly places that they do not expect and because Epithioloid
Sarcoma is one of the rarer Sarcomas there is even less research etc. Anyway I really do not know what to say to family and friends - as I gradually
become more disabled by this Sarcoma, and get tired easily; yet put on the happy face and try to live normally, with laughter and the hope to try and fight on (feeling sorry for myself and those close to me - sorry).

You may well ask "what next?"; but do not be afraid to ask me questions or talk about the `C`word - we all need support.

Luv XX

Counting the Pennies ....not the cakes eaten!!!

Well the Charity Cake and Book Sale went really well. Lots of books were donated to sell and many a person made cakes....we had lemon cake, carrot, chocolate, fruite and coffee to name but a few; not forgetting the sparkly cupcakes which looked too good to eat!! We raised £336 to be split between Sarcoma UK and Macmillan and a jolly good time was had by all those that attended and helped at this event. Time to chat with friends over a cup of tea, eat cake and choose a good book. Yes these simple things in life can still make people happy.

We also had some great support from members of the East Midlands Sarcoma Support group - donating cakes and time to help; and thanks also to friends and family for there support.

It took us three days for the family to finish the Coffee cake that I bought, but it was really yummie !!! Oh and we have a whole load more books to read...so who's going to make the coffee??

Luv
Kathryn

I would like to be a bookworm!!

Well Sian, Claire and many other little helpers are getting ready for our Charity Cake and Book Sale on Saturday; raising money for Sarcoma UK and Macmillan. So many people have offered to make cakes and donate books that I am getting worried that there will not be enough people to buy the cakes and books (help!!). So posters have gone up and I hope to get some publicity via the local radio station - so cross your fingers that people come and buy, buy, BUY!!

Donating the money to Macmillan is close to my heart as many people I have known (including myself - well I should know me!); have had access to there services and support. As you all know I am a member of Sarcoma UK and they have been a tremendous support to friends with sarcoma, and are key in raising awareness to gain a quicker diagnosis / referral from GP's.

Anyway the pain is still a part of my life and so I rattle with more pills and potions; though I have decided not to take my sons advice to sell some of my drugs on ebay, eventhough we would all like a nice holiday!
The medical team have finally decided to try and investigate the pain further and are sending me for a `glow`in the dark test (a bone scan); shame it is not Halloween next week I could have made a fortune.

So on a daily basis I try to escape the big `C`word, but the pain follows me and reminds me that the gremlins of sarcoma are still with me. I plan events, lunch with friends, mad nights at the theatre, cinema trips with daughter and try to party when I have the energy. However the best escape is a good book, a mystery or thriller and a twisting plot that keeps me guessing. Roll on Saturdays Book and Cake sale when I can once again become a book worm.

Kathryn XX

p.s. David, Harriet and Andrew have shown me so much love and laughter this week; madness rules this house as always.