Strange things happen ...but true!

So went for the results of my scan....(what will they say? will it be good news/bad?, how will I feel this time?), the tumour in the lung has grown (small amount - but great in terms of my ability to breath!!), and somehow they say that the disease is STABLE!!! ( that does not make sense if they say it has grown), and in the next breath discuss the possibility of me going on final treatment Yondelis (trabectulin chemo); so they seem to confuse me as to whether it is stable if it is growing!!! So the oncologist at Leicester is changing jobs and seems rather disinterested in patients and there problems. When we discussed the breathing issues - well there is nothing further that I can do / you may end up with another problem next month (so what if I do!!! It is all about obtaining a `quality`of life !!). I want to have minimum pain / breathlessness and to try to live with this cancer "So please help me!!". Thankfully my GP and Macmillan Nurse are great and support my views on `Living with CANCER`. So the Morphine has been subscribed....apparently good for breathlessness! and the lactose for constipation (oh such joy!!): and I am medicated and going forward,even managed wine with friends tonight (late night had by all!!! - thanks!!).

Have moved forward with the help of the local hospice and GP team - might not be able to talk much to you kind people as I do not want to upset/burden anyone. We all have problems and I have those day to day as well as the C word - so do not feel as though it is difficult to talk about your problems or happiness as I want to share me life with people.

Love to you all

Kathryn X

Carry on Life!

I am trying to take my mind of the results of my CT Scan, so doing lots of things and out and about (despite not breathing too well). Went to a Burns Night; which we have never done before and had a great time with friends. The Haggis was piped in by a man in a kilt, and we had Scottish shortbread and a little wine to wash it all down.
Then last weekend the boys went to London to celebrate the end of Davids current exams (and to share a few pints together), apparently they did a lot of walking to see the sites and met up with John later to have a Curry. Harriet and I had Anne and Rebbecca to stay and the girls went shopping. Anne and I did some searching on the Internet for holidays, Jersey looked nice and not too far to travel. So yes I am still dreaming of holidays and am actually having a night away tonight - with my cousin Bev. We are going to Stratford-on-Avon for a night; to chill out, laugh and have a little madness.

Luv and laughter to all

Kathryn X